SBSK

[thisnewday]

Just after I wrote the previous entry, I was browsing YouTube and came across an extraordinary channel called "Special Books by Special Kids," or SBSK for short.

I won't go into a lot of detail here but, having just talked about looking for a book that would "save my life," it's interesting to have found one that could possibly change how I feel about it. My own life and many others.

That said, an introductory clip by its creator, Chris Ulmer, is found here: https://www.youtube.com/watch?v=jwFv-BtTiSc

LPK
Dreamwidth
9.27.2019

Comments

[thisnewday]

Thanks, and back atcha...

[bluecatartist]

There was a time you repeated some of my words back to me on a day when I was struggling hard - not sure what it was now but it reminded me to ... I dojnj't know, keep going>

WT has worn me to a nub - we had to go to Walmart for a weight4ed blanketd for her and ended up walking more and shopping nmore than we'd planned. I will revisit this when i'm not half-dead and over stimulated from all the Wal-Mart noises.

[thisnewday]

Aww, sorry to hear that the day has gone that way for you. But I hope that the new blanket will help WT and, by extension, her mom.

Situations like this remind me of the instructions given at the start of an airline flight: if the oxygen masks drop, put yours on first and then your kid's. Because if you can't function, you won't be able to help the kid.

Of course, I've been as bad as the next one when it comes to actually doing that in everyday life. I'm still that way with my grandson--deferring to his needs before taking care of some pretty basic ones of my own, sometimes.

Sometimes we do that when we have a feeling that we're close to turning a corner on something and sometimes we just keep on because, well, we have to.

I sincerely hope that there's a corner, here and there, for you and WT and that around those corners is a bit of respite for the worn-out mom...

[bluecatartist]

2017, 2 different conversations we had, first in late May and then in October. "Your reply was timely as a gift of giving my words back to me at a time I esp needed to reconnect w. myself. It the depth of despair there they were and I am humbled you have used them to help keep yourself going too. If we are not here for to help others, then for what?"

~~~~~~~~~~~~~~ Sept 30, 2019

I coined a phrase at one time about being "Wal-Mart tired." Today was definitely a "Wal-Mart tired' kind of day and literally from Wal-Mart. The body, the brain, the sensory overload hit me all at once. W talking almost non-stop was also a sensory problem. Was a day.

But the blanket seems to have already helped to some degree - she had napped earlier in the evening and reported that the weight felt really good. I'm curious to know how she feels after she sleeps longer. She's asleep now, I woke up at 3am after 4-5 hours of sleep.

The text was not that hard to find as I had only recently done the DW acct to cross post w. LJ and move LJ entries as it was in question about LJ remaining. Or something, I don't remember the specifics.

Monday morning! Hope your day will go as well as possible. I'm still reading in THE GARDEN OF SMALL BEGINNINGS by Abbi Waxman, and enjoying it. Been watching TV more as the Fall season has returned and I'm watching my old standbys and seeing what new shows might be worth watching. Always w. the reading and watching for pain distraction and moving the day/evening forward.
Take care.

https://bluecatartist.dreamwidth.org/18633.html#comments
"You are the books you read the films you watch, the music you listen to, the people you meet, the dreams you have, the conversations you engage in. You are what you take from these. You are the sound of the ocean, the breath of fresh air, the brightest light and the darkest corner. You are a collective of every experience you have had in your life. You are every single second of every single day. So drown yourself in a sea of knowledge and existence. Let the words run through your veins and let the colours fill your mind." ~ Jac Vanek
i hope that all of this is true;

2017-05-24 02:20 AM (UTC)
L: if it is, then there is also hope

that i may come alive

again...


2017-05-24 03:14 AM (UTC) D: If there is hope, then me coming alive as well. I have several serious medical issues but major dental intervention early this year got rid of infection/inflammation and physically I feel marginally better in some ways. Makes me feel as if I may have a life expectancy again, and last holidays I thought were my last. But onward!

2017-10-12 04:04 AM (UTC) L: I loved this quote, the first time that I read it. Five months later, trying to live it, loving it still. Have not kept up with your journal, your life, since then, but wishing you well...

2017-10-12 07:04 PM (UTC)
D: Thank you. Your reply was timely as a gift of giving my words back to me at a time I esp needed to reconnect w. myself. It the depth of despair there they were and I am humbled you have used them to help keep yourself going too. If we are not here for to help others, then for what?

Spent time re-reading entries to help lift me again and take steps to feel ground. Life imploded more than a bit lately. What dentist does dentures and then says the hard liner - the finishing part - is going to cost $1500 more? It is not in my paperwork, they claim they discussed it as a future step but I don't remember. Which w. being disabled, stressed w. broken caps on front teeth, I could have missed a lot!

I've neglected DW lately but need to come back. I did read some of your entries I'd missed, your workshop and grandson and (as I do) keep limping forward as best you can. I wish you well too.

[thisnewday]

Hello D, I'm up as well after about 5-1/2 hours of sleep. That has seemed to be my pattern lately, but some mornings I'm able to go back to bed after an hour or so spent dealing whatever has fallen upon me in my subconscious or in my dreams or both. Other days, well, there's the grandson and the "other things" that both intrude upon and make up a life.

I've read through your whole entry this morning and truly appreciate so much of what you've said. It's one that I'll have to come back to several times because of how I seem to process things these days. Or maybe it's always been that way and I was more clever and/or less conscious about the way that I masked that process from myself and others.

For instance, I was always rather partial to short stories and to writing things in short episodes and lately have discovered a treasure trove of such manageable bites of life in SBSK and Omeleto. I mention all this just to explain myself to you and to understand it myself and to say that I appreciate being able to share this with you because the one thing sort of moves the other in this way.

(Your quotation from Jac Vanek was like a light at first glowing on the horizon and then coming up full as I read it, illuminating what I've recently been experiencing.)

You and Chris and the artists represented in Omeleto have helped make it clearer to me, than it ever has been before, that in this life this is a huge part of what we do for each other. And it is perhaps where our greatest value as individuals lies.

Anyway, I hope your day goes as well as possible too. I'm reading my novel in small bites and, as I think about it, that's probably how I need to live my life as well. (In fact, an old friend of mine--my boss, back in the day--used to say when we'd have a huge job come into the office, "How do you eat an elephant? One bite at a time.")

My best to you and W and Mr. Blue...